Ok sweet, when I find a remote that doesn't need lots of experience then sure. Of course a disabled person, would be able to shine above all the other non disabled people and get the job(sarcasm ).

Telling people to get a remote job isn't disability advice, in fact I frankly think it's talking to disabled people like they're stupid. Most of us here, who need remote jobs. Have begged for them then have been told we're not entitled to them. That remote jobs should only be for the best of the best.

Which is it? That disabled people should get remote jobs as an out for not being on disability. Or that remote jobs are highly sought after, so the chances they'll choose a disabled person are very very slim. Unless your skill set is simply too high to deny.

(screenshot from yt reels)

Not because non disabled people treat me badly, that happens to everyone with disabilities. Of course it sucks(to say lightly), but it's not really a special experience.

Something I see talked about less, is being treated badly by officially diagnosed high functioning and or masking autistic adults. I hold no hatred for them for being more functional than me, what I hate is the fact they always treat me like I'm lying about being disabled by my autism. They often act like their autism is the only autism that a speaking adult could have. That any type of autism that could seriously affect one's life, must leave them to be a stereotypically level three person.

This belief has harmed me in trying to get disability support. I have nothing and I suffer severely every single day. Autism is my main disability and I am also officially diagnosed. I struggle heavily with working, driving, social interaction and self care. I have terrible meltdowns when I work and have burnouts so badly I often can't care for myself.

They often talk in a way that ignores people like me completely even if the spaces are general autism spaces and not, spaces made just for higher functioning folks. I'm tired of the disgust and the disrespect I get for having traits of my disability. I'm tired of being looked at like a failure because I cannot push through my burnout. That's not an option for me, if it comes down to having to push through or being homeless. I will sadly become homeless. I have an average IQ so not intellectual disabilities either. Why can't people just believe me that autism sucks?

It affects my life daily, throughout all parts. The lack of disability support because "level 1 isn't a disability, we can work just fine!" The idea that a lot of level 1 people push is genuinely killing me. I wake up everyday scared and frustrated because people never take me seriously that I need help. Even medical professionals genuinely treat me like I am not disabled and that I'm just fucking quirky. Despite my symptoms being documented and very well known autism symptoms. Not things I just pulled out of my ass or off of tik tok.

I don't hold hatred towards anyone, I just wish people who weren't disabled wouldn't speak for all of us. I just wish they would understand when it goes from "I'm not personally disabled by my autism", to "level 1 autism isn't really a disability". That shit genuinely hurts people like me, not just our feelings. Our wellbeing, it hurts our likelihood to get work, disability, food, medical support.ect

So, last year I moved to Europe for studies. In the winter it snows. Not like Russian Siberia but it snows enough that it causes issue for my electric wheelchair.

I have 'EZ Lite Cruiser Standard' model from the US. What are some ways I can modify my wheelchair so it becomes snow friendly? Like I have to go to a class and grocery store. Otherwise, I don't go out in snow.

I looked into snow chains and skis attachment but those are Not feasible for my wheelchair.

Thanks for interesting ideas!

I've always wanted to be a humanitarian/global health person. Imagined myself going about helping run emergency responses to disasters and working with local communities to improve disaster preparedness. Then I found out I need to live the rest of my life in places where I can easily get ambulance services, and poof goes that dream lol.

I got into medical school after Bachelor's and everyone congratulated me and I know it's a big achievement. But to me it just feels not enough. It's not that I'm not interested in or stimulated by medicine, but I just don't feel the burning passion inside me. I get close when I think about being a clinical academic who focuses on promoting equitable medicine/medical research, or about going into public health training (I'm in the UK), but then I'm hit with immense sadness that I'm here doing this because I can't do that.

The worst thing is my disability around mobility doesn't affect me every single day. I get occasional flare ups and a massively increased risks of accidents that would immobilise me instead. So when I don't feel any symptoms, I can't stop thinking well what if I'm in the field. What if I'm lucky and it doesn't happen. What if... And then I have to cut myself off because I know I'd be a liability in the field.

It's been a few years like this making it impossible to make career decisions. I feel like I need to really process this. If anyone could share any experience, self-help resources or therapists I'd be so grateful!

We have kitchen knives that are each made of one piece of stainless steel, as others tend to come apart after a while, so is there anything you can recommend that I can put on the handle to make it more grippable, that my kids can take off when they want to use the knives?

What is wrong with the world honestly,
Migraine with brainstem aura sufferer/ Fragrance Sensitivity sufferer

I am a committee member in charge of a program for students with disabilities aged 13–17. you suggest some suitable, inclusive, and engaging activities for them?

So for context I am allergic to the cold, so I have extreme limitations to the outside world from October to May. It makes it hard to go out and do anything, not impossible, but hard, and typically it is only safe for me to do things with people like my mom who understand exactly how I need to be accommodated. Because of my condition I spend significant amounts of time indoors, in my room.

One of my bestfriends has been amazing in understanding my condition and my limitations, and is okay with almost always meeting me at my level for hangouts, aka hanging out at my dorm room, because transportation is an issue for me. The thing is though is that even though its amazing that she is willing and happy to meet me at my level, I get so fucking sick of being trapped indoors in one place all the time. It makes me angry that we always have to hangout at my room because anything else is difficult for me. I see her go out and do fun things with other friends and go on trips, and I desperately want to do fun things like that with them too but most of the time I can't.

So it's like I'm so grateful she is happy meeting me at my level, but for her, hanging out in my room is temporary, and when she leaves she gets to go back to her friends who can do more than I can, and I don't have that option, I'm just fucking stuck here.

I'm just so frustrated and I know she is going to notice that something is wrong, but I dont know how to explain this feeling😭

I am 25F, work part-time in early education, have a spotless record, and have Lupus.

This week I was pulled into an abrupt meeting with my 2 supervisors and our HR toward the end of my day. I was told that I had disclosed a qualifying disability and after 3 instances of this disability being brought up I was being offered accommodations.

This is red flags for me, though I know for most this could sound like an employer actually listening to them. For context, over the last 2 years, since our new HR started, 2 people with known health issues have been let go shortly after starting the accommodations process. So naturally I'm on edge, especially being employed in an 'At-Will' state.

The 3 instances they mentioned are when I 1.) disclosed my medications that could potentially pop on a drug test when our new policy was first rolled out. 2.) Mentioned a few months ago at a luncheon that I was getting a puppy in hopes of training him for service work. And finally 3.) I called out last week due to pain.

Now, my Lupus doesn't effect me greatly, though I do have the occasional flare-up that usually results in me calling out due to a fever or the inability to move my hands. I have been bounced from rheumatologist to rheumatologist due to insurance changes, disagreements in treatment, and doctors relocating. Currently I'm in the " Your appointment is in a week but the rheumatologist is going on a spontaneous trip so we need to reschedule you again 3 months from now" stage of seeing a new doctor.

Theres a plethora of details I could add but I don't feel like they'll add to the main question I have: Am I an asshole/stupid for not wanting the accommodations I didn't ask for?

I don't want to be labeled a problem employee, nor do I want them to be able to say my disability isn't something they can accommodate due to the nature of the job. Any advice would be great...

Anyone know if this works? Vital FlexCore

https://offer.buyyourvitalflexcore.com/info/int/1/images/features_section_pc2.gif

I wish it was easier to find someone to take care of you while going on a date. I have a lot of issues and I don’t want my caregiver to come with

My caretaker just fed me. It is my first and only meal of the day. For time reference I am Eastern Standard. So, even though I said I was hungry hours ago, and everyone in the house has eaten at least twice before now, dinner time 7:58pm. This is my first and only meal for the day. It wouldn’t be so bad if it weren’t a regular occurrence.
Some days I am lucky enough to get breakfast but most days, it’s just dinner. I guess in hindsight, I should be thankful because their are some people who don’t even get that. (And this is the thought process that has kept me in these jacked up conditions for years.
I think it may be time to blow up my life.

So for context I have a brachial plexus injury,partial paralysis in my right arm and suspected umnd so progressive paralysis (lower limb)

Biggest difficulties is with the kitchen as can imagine, dropping stuff, knocking them ect ect

But I understand this is the NHS and they may not suggest anything more then a grab bar

What should I expect?

(I am in housing association)

What it says on the tin basically; how do I tell if I need a mobility aid and what would be best/what sort?
Im in the UK and Im disabled in a few ways but one thing Ive been struggling with for years is chronic pain and fatigue, and increasingly Ive been struggling to travel outside the house because I cant drive, and even with buses if theyre close enough theres some degree of walking to them or after getting off of them usually.
I get a lot of lower back pain, as well as knee, hip and foot pain. But some days I can manage the 10 minute walk to the nearest shop - in some pain yeah but not so much I need to give up and ask a relative for a lift.
However on my birthday last month I went to London with some family for an event and it was a 5 minute walk from the tube stop, and I kept having to stop, it was really bad. On the way back to the tube the 5 minute walk took me 30 minutes and a lot of stopping.

I know I definitely struggle with mobility because of incidents like these, but is it enough to warrant getting some kind of aid? (New to reddit btw, hope this post is ok.)

I'm a young adult (18-20) in Germany and I've lived with chronic pain for years now. I'm in the process of getting diagnosis done but it's taking a lot of time and it takes a mental and physical toll on me. It's a lot of stress, appointments, doctors and just a LOT.

•I've got constant headaches since I was 11yo, a few years back an mrt showed a water cyst in my brain that the doctors assume causes it, though the cyst isn't a cancer or something that generally should get removed.

•joint pain: fingers, wrist, elbows, shoulders, hips, knees, feet

•dizziness, like a mild constant dizziness

•random chest pains

•reflux

•menstruation cramps, bad ones, for years. On my ovulation, week before the period and week of my period (gyn are refusing to test me for endometriosis or anything even though it runs in the family and EVERY woman in my family has it)

•my R shoulder dislocates itself (the joint shows damage on the pictures that were taken of it)

•insomnia or sleep problems

•i suspect autism and/or ADHD (yes I've made my research, years of research and I have multiple pages of symptoms on it)

My joint pain (have had for 5years) has gotten worse thorough the years, at the start it was maybe a 1-2, about last year it was 3-4, now it has gotten to a 4-5 on a regular day to day basis.

On bad days (a few times a month) the pain is between 8-9, it hurts, i can barely stand long enough to make dinner, go out to grab groceries, those days are shit.

My knees regularly give in, though most of the time I can hold onto a wall and don't fall directly on the ground, sometimes I do.

On everyday basis walking is okay but I do need breaks for longer distances, writing is getting harder (can't write half a page without cramping up and getting hand pain, in the past I could write 5-10 pages without stopping).

My joints feel unstable, hurt when they crack, feel loose sometimes.

Recently I've been at the day clinic (10days) for rheumatism, luckily we could remove rheuma, artrisis and a few oder from the list of possible causes. It's good and I'm happy and at the same time not. It's not like I want to be sick but it is disappointing to get tests done and everything and not getting much out of it, if it makes sense. Like I was hoping to find out what it was and got home with a list of "it isn't these diseases". It's just that disappointment where you're hoping for an answer and you get a not-answer.

Luckily though we could find some things, like I got some:

•generic hypemobility (I didn't exactly fit in the hEDS criteria but I'm getting sent to another doctor)

• Raynaud's syndrome (I'm not sure if it's the right English name, I think though)

•chronic cephalgias (headaches)

It isn't much but at least it's something and the knowledge that it's not just in my head is kinda reassuring even though I hate it.

I haven't had good doctors in the past, most just saying it's normal, dismissing it, saying to loose weight and just that generic dismissal that I really don't need to elaborate on, I think most people understand what I mean.

My doctor at the day clinic was AWESOME, best I've had. Even though we didn't find anything relevant she still suggested some things. Well generic stuff like keep an eye on the nutrition, do sport/stay active, loose a bit of weight.

But she also told me to seek a psychiatrist, partly because I good mental health has impact on pain sensitivity and stuff and bc of my sleep problems but she also suggested to get tested for ADHD because of said sleep problems. Because of the joint pain she suggested to go to a genetic specialist (partly because of hypemobility, possibly hEDS or something if that kind) and also an orthopedic because of the joint pain, she suggested it might be something with the ligaments and the other parts holding the joints together wrong.

I'm happy not to have been dismissed since I've been told from multiple people and doctors that it's just psychosomatic and it's nothing. And tbh it does make me overthink sometimes even though it's not like I show people that I'm in pain or say it out loud often. I mostly just push through the pain and say I'm fine, that's what everyone expects me to do.

I've also asked for some mobility aid, nothing specific but just put the idea out. But it's kinda complicated because the health insurance won't pay without a specific diagnosis or reason for the pain.

It's kinda a lot, so thank you to whoever read this through, I just really wanted to let it all out somewhere. I hope to get forward to getting a diagnosis and what helps.

I’m just wondering how much you’re lifting and if you’ve had issues with anemia??

Heyy!

Does anyone here have the long version of the adaptive Anna Field fur coat? I can't really find any decent reviews or pictures on the internet and i would really like to get one but i wanna know if it's worth it for that price. I would be really glad if someone who owns one could tell me their opinion or maybe show a picture of theirs.

(I'm an ambulatory wheelchair user with joint issues.)

Thank you! :)

Hello,

I have GA1 (glutaric acidemia type 1 (diagnosed at 22 months old)), and am in a electric wheelchair and have a Tobii communication aid with a pole to connect it to my chair and talk with.

So, I went out with another disabled, wheelchair bound person, and after they said they had a good time, they aren't interested anymore.

So, just for reference, this was my first proper date. I've just been in long distanced relationships. None of them went to see me, and this and that happened, etc..

I'm not sure if I can be so opinionated with people. I mean I just met you... However, I would like an abled bodied person to date. If I had to choose. However, if another wheelchair bound person comes into my life and we like each other, then I would ask them out (or vise versa).

I have been on Tinder (on and off) for years (4-6 years abouts), and some people swipe right on me, then unmatch with me. Like ??? Do you like me, or did you not see and like the bio? Lol.

I'm really scared and unsettled because I would like to have kids at 30 (I'm 27 now), so in about 2-3 years. That is just a preference though. If it takes longer, it takes longer.

My younger, abled bodied brother (26) is going out (sometimes living with) a woman, and he hadn't got a girlfriend in a relatively short amount of time (about 6-8 months) when he was (I think) ghosted, before they met, and they met on Tinder. Actually, he met two women on Tinder. And I am happy for them.

But it's like... I'm older than you. I should be going out on dates, living with, planning with, etc. with someone now.

And I know if I were abled bodied, I'd be, most likely, married, in the army, and enjoying life with them. I'm not sure if other people can know that, but I know.

And I know that there's disability dating apps, but they're on a phone or tablet, not a Windows 10 machine. Like Elie (or is it Ellie?) that lets you go on until you cannot anymore. And can freely message them.

It just sucks. It's like I can't stand (hahah) against my brother. And it's just annoying because we look similar.

Is anyone else like this? Think about this? I would like to hear your thoughts.

Hey everyone!

I'm from Odisha, India, and I'm looking to make friends with people from Odisha who have cerebral palsy (CP).

A little about my interests: I enjoy watching anime, J-dramas, and web series. I'd love to meet people with similar interests, chat about our favourite shows, share recommendations, and build genuine friendships.

A few things I'm looking for:

-18M

- People from anywhere in Odisha.

-Friends who have cerebral palsy (CP).

- People who enjoy anime, J-dramas, or web series.

Please have Discord, as I'd prefer to chat there.

You don't have to share all my interests. I'm happy to get to know you and learn about yours, too!